My life with transplanted kidney…

… is hard. I am very happy that I have her (in Czech a kidney is female and I just can’t write IT) and trust me, I do love her. Without her I would be dead now. Dead for 11 long years already. And I wouldn’t have the most amazing daughter in the world. Nothing. Just nothing. But the gift of life was not for free.

People with transplanted organs have to fight for a “normal life”. They have to put way more effort in it than healthy people. Each pill we have to take to keep the transplanted organ safe in the body has long list of side effects. From those that are just tiny little details like my hair and nails being weak, being more tired than others and needing longer time for regeneration after exercise to more serious ones like causing depressions or diabetes, to those that actually threaten me as they increase significantly risk of all possible illnesses like cancer, heart attack, stroke and many many others.

But still it’s worth it. At least for me. Every minute in my life I can spend with my daughter is the most awesome gift I was ever given and I am endlessly grateful for it. And it wouldn’t be possible without the transplanted kidney. So I am very, very much grateful for this as well.

 

2016 Overview

Well, I think 2016 wasn’t the best year I ever had but to be honest, wasn’t the worst as well, so I think I can say it was average.

It started with recovery from bladder inflammation and a break up (after just one or two months of dating but still it was painful for me). Well, one of the worst beginnings of new year. Full of depressions, sadness and tears. When I recovered fully and started to work and exercise again, another bladder inflammation surprised me in February. This time way stronger so I had to stay in a hospital. When I recovered again, thrombosis in my right leg stroke me in April and forced me to stay in a hospital again.

At that time I started to be really down – not being able to exercise for a long time caused some weight gain (well, nothing serious, around 2-3 kilos, but I hated it) and loss of condition. I started to prefer being alone in my flat and pity myself. I know it wasn’t the best idea ever but I just couldn’t help it. I just needed it.

Fortunately after few rivers of tears, roller coaster mood swings, hours of self pity and tons of used tissues, my brain decided to change the tactics and to try to run again. Running has always been my life saver so as soon as I started to run again, everything was suddenly better, even though I had to start almost from the beginning again.

I also started to do weigh exercises so my body became stronger and everything was covered with sun light. I finished few runs by myself, few with my dad, including 2run (me 10km + he 11km = half marathon together) in Ceske Budejovice and the most beautiful run in my life – Behej Lesy Karlstejn (12km).

Unfortunately another bladder inflammation brought me down in October but this time I didn’t take it that tragically. Just another visit in a hospital.

Work-wise this year was very good. Nothing really changed from last year but I do love my job and I hope I will be able to do it million more years 😉 The great thing is that I can work even in a hospital so unlike my running, my hospital visits didn’t ruin my work schedule.

Relationships…oh well, one ended right at the beginning of this year an none other appeared so this year was not really love/relationships friendly but I cannot force it. Hopefully it will come once (soon) but if it doesn’t, it will not ruin me anymore as I am pretty happy living my life as it is now.

Overall I think this year taught me some important things and I believe I am now mentally stronger and it is easier for me to overcome hard situations and obstacles. I hope next year will be better and healthier. I have many plans and I want to start doing some new things which I am excited about, so wish me luck 🙂

Anyway..to everyone who came or will come across this blog, I wish you all very happy, successful and healthy year 2017. May all your dreams come true. (And don’t forget to visit my pages again ;)).

Movie: Transcendence

http://www.imdb.com/title/tt2209764/?ref_=nv_sr_1

This movie from 2014 attracted me when I saw Paul Bettany in the first scene followed by scene with Johny Depp. I never heard of that movie before and the theme sounded interesting to me. When I saw Morgan Freeman in the next scene, I decided to give the movie a chance despite the fact I was about to go to bed.

The beginning is pretty fast. You have no idea what’s going on, just people are dying. However, when it calms down a bit, the movie comes up with some very interesting ideas about the current world and all the new technologies the scientists come up with day by day.

It’s actually interesting to think about where are the borders between technology and humanity. Today, when it is being considered normal to use artificial hands, feet or any other part of the body (or at least transplanted organs ;)), and when robots are acting more and more like humans, it is just a matter of time when people will come up with artificial consciousness. And I bet many are working on it already.

I already saw few movies or episodes in sci-series on this theme so it was nothing new for me but I must say I did like this particular movie. I liked the story, the actors, the way the movie was made, etc. However, as it brought nothing new to me, in fact, the artificial consciousness became bad and was destroyed, a little bit of cliche, no?

My evaluation is 7/10.

Czech transplant community

Few moths ago I was writing about establishing some community of people with transplanted organs and people around them. Back then I thought I had to start from scratch but it turned out that there already exist some smaller or bigger groups who try to put these people together.

At first I found the web page Transplantsport.cz (in czech only) which seemed to be about transplanted people doing some sports (obviously). However, all the articles were 12 and more months old. So I decided to contact the person, who was signed under the pages, Martin Turek, if he agreed to cooperate and run the web (and associated facebook profile) together.

I was glad that he replied my email prety fast and was glad that I contacted him. He said that he somehow lost power and will to run the web just himself. That he tried to find someone who would cowork with him on it but was not successful to he just lost the taste to do it. However, when I wrote him and wanted to help him and cooperate with him, he found it again. And so we started to write articles, update the FB profile and tried to reach more and more people.

After some time, when the article about me was released, I received a contact to Tomas Drevikovsky from Czech transplant team (CTT). CTT is a nonprofit organization which unites people with transplanted organs who like to sport and who participate in European Transplant and Dialysis Sports Championships and World transplant games.

They wanted to contact me as they saw the article about my running and thought that I might become valuable member of their team which pleased me a lot. So I decided to join them.

None of these two groups/organizations/communities is exactly what I wanted to create, however, it is a good beginning and I believe that it is a good starting point. I believe that now it will be a lot easier to bring people with similar problems and dreams together.

 

11 years since the transplantation

Few days ago, on November 2nd I was celebrating 11 years since my 2nd transplantation. Well, I can’t really say I was celebrating, but each year I remember the day of the transplantation and evaluate the last year and all the years since the transplantation.

It is always kind of weird because in Czech republic 2nd November is the day of Memory of deceased. Which means that most people go to cemeteries to think of those who died, bring them flowers, clean the graves, etc. I always think of the man whose kidney I have. In the past I used to go to church to light a candle for him but last few years I just think of him – what was he like, what actually happened that he died, etc. And I light the candle at home.

But despite this fact and also despite the weather which is mostly rainy and cold as it is already fall, I try to stay positive and kind of celebrate. Mostly just in my head. I am really grateful that the kidney is working well despite the stress we went through at the university or at later at work, also we managed to go through pregnancy together and managed the hard birth giving. We also managed to go through the strong depressions during and after my divorce and last but not least, we managed to cure all those pneumonia and bladder inflammations and other illnesses during the years.

But on the other hand, from time to time it comes into my mind that the average kidney transplant life expectancy from deceased donor is 8 to 12 years. Which means that I am actually already there and I just can’t not to think about what comes when something happens with this kidney. When I think about getting back to dialysis, I suddenly start to feel very bad. My head starts to hurt, my blood pressure increases and I just start feel terrible. I can’t imagine going back there…and… I don’t want to continue about these thoughts in this post as this post was supposed to be positive, describing what great success it is to actually have transplanted kidney all these years and live the life I live, which means going to work, having great daughter, being able to run and exercise…but somehow my thoughts are more and more leading towards the dark side….

Maybe it is because I can feel that my health condition is slowly but constantly getting worse. I was diagnosed with diabetes, lately also with high cholesterol, which I was told is connected with the diabetes, my bladder infections are getting more often and more serious…and despite the kidney is taking everything very well, the creatinine is still up to 100, I am starting to be afraid what kind of post I would be writing next year.

Article about me

Some time ago I received a message on my Facebook from some woman named Jana Fili Ptackova that she was an editor in chief of a magazine Stezen which is a magazine for dialyzed and transplanted. I knew the magazine but didn’t know her so I was a bit skeptic about it. However, I agreed with the interview and we set up a meeting.

We met in a small cafe place and had a really long talk. She told me that she was interested in my story and also in the fact that I was running a lot even after transplantation. She was asking me about my health, running, family, work etc. and she was recording every single word I said. For me it was more like a chit chat more than interview so I was interested in the results.

After few weeks Jana sent me the draft of the article and also told me that she would like to have my picture on the cover page. So I sent her some pictures I had from my runs and here you can see the result:

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You can also read the whole article in the magazine here (it’s only in czech though): stezen_2016_02

Book: Joy Fielding – Now you see her

Here is the official description of the story from www.joyfielding.com :

When Marcy Taggart goes to Ireland after divorcing her husband of twenty-five years, a chance encounter catapults her entire life into turmoil. Years earlier, her daughter, Devon, disappeared in the icy waters of Georgian Bay after a canoeing accident, her body never recovered. But on a day trip to Cork, Marcy is certain she spots Devon walking down the street. When her daughter disappears into a crowd, Marcy begins a desperate search to find her — and to uncover the disturbing truth that might, in the end, be her only salvation. Exhilarating and engaging, this is Joy Fielding at her best — delivering a pulse-racing, tension-filled read.

I read this book right after the Someone is watching title and it felt like reading almost the same book just with different main characters and different tragedy behind. But the template was almost the same. Some woman who sent through some terrible tragedy and now is mentally broken and starts to act weird. Starts to trust someone who she barely knows and he/she turns out to be actually the bad guy behind the weird situations in the end.

In the previous book Bailey started to see the man who raped her in every man she met who physically looked like him and in this story Marcy saw her daughter in every girl which physically looked like her daughter. Bailey started to trust her helf-sister and Marcy trusts some waiter she meets in a restaurant.

I think the Someone is watching book was more boring and slow but at least the main character was not acting as much stupid as this one. While reading this book I had few times feelings that I might not be able to continue reading the story as it was stupid too much.

I mean, I can understand that sometimes when people go through tough times they might not act rationally but I think in this case the author went too far. And actually as I was reading these books one after the other, it was more than clear to me who would be the bad guy in the story so it was too predictable for my taste.

So, I am giving this book 5/10 the same rating I gave the previous book and I feel like I need to take pause from this author for some time to be able to read some book from her again.