Whole30 after transplantation ‚Äď Week 4

End of the 4th week is here, awesome! Just two more days to go and I will be able to start adding the restricted food! First of all dairy products. On Wednesday I will be allowed to eat yogurt, cream or drink milk! That’s so amazing! I believe it will be the best yogurt I ever had in my life ūüėÄ I am literally counting minutes!

Oh well, I have to calm down now and write something about the 4th week. To be honest, on Monday I still felt like apathetic, without a taste for any food and just determined to finish it with whatever food but somehow it changed on Tuesday and I decided that I will enjoy the last remaining days and will try to cook unusual meals, meals that I never cooked before or at least those I cook very rarely.

I had to stay at home with my daughter as she got ill (yes, again) and so I had enough time for my experiments. The first meal I tried was Shepard’s pie which I never tried cooking before (However I ate it few times while working in London and I loved it). I was cooking it around 2.5 hours and I have to say it is really labor intensive meal! And what was the best – my daughter didn’t like it so I had to eat the whole pie myself ūüėÄ

The other meals I tried were borsc or pumpkin soup. My daughter didn’t like any of them ūüėÄ She just doesn’t like healthy meals, what can I do? At least my friend who came for a visit had a piece of the pie and my ex-husband and his family had some borsc¬†so helped me a bit. And they liked it, phew! ūüėÄ

In this week I should be already used to eat 3 times per day (Yeah, don’t have any issues with it), I should sleep better (Yup, I sleep like a baby, around 6-7 hours), I should be resistant to smells from the bakery (are you kidding me? I had a dream about the fresh bread smell few days ago and can’t wait to bite some!) and I shouldn’t have munchies (Hahaha…it happened to me that I was dreaming about biting Bounty, chocolate cake or Lindt pralines and woke up in shock that it was only a dream).

But to be honest I am very happy that I (almost) managed to go through this challenge. First, for the whole program I didn’t use my diabetes pills and my sugar was almost perfect (except the morning sugar in the first two weeks, after that it was perfect as well). Second, I can feel I lost some weight and I am very curious about how much. However, I am already wearing clothes that were forgotten in my drawer for some time and it feels realy good. And third, I found out that I can have a very strong will when I decide to achieve something. One example for all – on Saturday I went with my daughter to see the lighting of Christmas tree on the Old Town Square and she¬†wanted me to buy her Trdelnik, which I love. So I did..it smelled like cinnamon-vanilla heaven and I could hear the crispy caramelized sugar when she was biting it. And at the end, she gave the rest of it to me that she can’ anymore. So I was holding it in my hands the whole way home, smelling it and still didn’t taste it! Omg, I am so buying it as soon as this challenge ends!

So, that was my last whole week of the Whole30 challenge. I am so excited about next week!

Day 22

 

Breakfast: Mixed 1/2 avocado with 1/2 banana and blueberries, cashew nuts, walnut

Lunch: Baked turkey breasts with potatoes, roasted vegetables (onion, red and orange pepper, beetroot, green beans)

Dinner: Caraway soup (lots of caraway seeds, ghee, carrot, potatoes, egg)

Day 23

 

Breakfast: 2 slices of Schwarzwald ham, piece of fresh kohlrabi, carrot and cucumber

Lunch: Shepard’s pie (baked minced pork and beef meat and a piece of baked turkey meat from the previous day, onion, carrot,¬† beetroot, garlic, thyme, rosemary, the mash was made from 1/2 baked Hokkaido pumpkin, 1/2 boiled sweet potato, 1 boiled potato, 2 eggs), cherry tomatoes, carrot, cucumber

Dinner: Apple (I ate the lunch pretty late and wasn’t able to eat for dinner anything else than this)

Day 24

Breakfast: 2 slices of Schwarzwald ham, cucumber, cherry tomatoes, kohlrabi, blueberries, various nuts

Lunch: Baked chicken leg with grilled potatoes, zucchini, sweet potato, fresh cherry tomatoes, cucumber (I know there are not many vegetables but I invited my friend for lunch and as we were talking, I managed to burn most of the grilled vegetables ūüėÄ oh well, at least we had a good talk :D)

Dinner: Shepard’s pie from yesterday

Day 25

Breakfast: 2 scrambled eggs with ghee, fresh carrot, cucumber and cherry tomatoes (I tried scrambled eggs after some time hoping it would taste better to me but nope, the same suffering as before ūüė¶ )

Lunch: Shepard’s pie again (Well, I made lots of it and I am the only one eating so what! :D)

Dinner: Pumpkin soup (rest of the baked pumpkin from the Shepard’s pie, sweet potatoes, potatoes, onion,

Day 26

Breakfast: Porkpie, vinegar, fresh cucumber, cherry tomatoes (I love this meal! It’s traditional food in Czech mostly people eat it on New Year with vinegar, fresh onion and slice of bread)

Lunch: Kebab with a vegetable salad (My second meal in a restaurant, it was very very yummy!)

Dinner: Pumpkin soup

Day 27

Breakfast: Porkpie again

Lunch: Borsc (beef meat, pork meat, sauerkraut, beetroot, potatoes, onion, carrot, tomato purée)

Dinner: And guess what – the pumpkin soup

Day 28

Breakfast: Scrambled eggs, cucumber, radish, cherry tomatoes, carrot

Lunch: Turkey minced meat, grilled potatoes, onion, sweet potato, yellow pepper, fresh salad (various green and red salads)

Dinner: Sauerkraut soup (sauerkraut, potatoes, carrot, sweet paprika, onion, smoked pork meat)

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Whole30 after transplantation ‚Äď Week 3

So the challenge is getting worse. Mentally, physically, overall. I started the week with illness as I wrote last time. As I got, even more, herpeses on my lips than the last time, I decided to call my doctor in IKEM and discuss the situation with him. He told me to go for a blood test and we would see. So I went on Wednesday when I was already able to leave the flat and went for the tests.

The tests had fortunately good results, creatinine being 93, CRP 0.7 and other results were good as well. The only issue was that they found an increased amount of uric acid which might cause gout, kidney stones, joints stones and even kidney failure. I got very scared and asked the doctor what it meant. Fortunately, I was told that the level is not too high and that if it is not long-term it should not be dangerous. But I immediately started to think about how to reduce the food that is affecting the uric acid level, mostly red meat.

So I am now trying to eat meat only once a day, usually for lunch and I am focusing mostly on white meat or fish. It is not 100% but I am more thinking about what I eat. And can’t wait for this challenge to be over. Not only because of this uric acid issue but also I am somehow losing my appetite. In the past, I always woke up and couldn’t wait to eat breakfast. Now I wake up and my first thought is “Omg, I will have to eat again…” Also, I don’t care much what I eat, I just combine food that I have at home to create some meal and complete the task. Sometimes I have to force myself after like 5 or 6 hours to eat just because I should. It is so not me! I was always passionate about food! Food was so important to me! Basically, I was thinking about food million times a day and now it is only¬†a duty for me. I am losing appetite and I am shrinking my portions as I just can’t eat more.

I am more and more thinking about interrupting the challenge and even some of my friends advised me to do so when I told them about these changes in my behavior and my thoughts but on the other side, I have finished 21 days and there is only so little left to achieve the goal! I don’t know….I don’t know what to do. I still continue with the challenge but there is a high probability that I might quit any time. Let’s see what I will write next week…

Here is my meals’ diary for the third week:

Day 15

Breakfast: 3 slices of Schwarzwald ham, mango and raspberries (I know it is very small breakfast but as I already wrote, I just cannot eat more)

Lunch: Fried turkey breasts, onion, orange pepper fried with olive oil with boiled broccoli and fresh vegetable salad (rucola, red chard, beetroot)

Dinner: Scrambled eggs with boiled cauliflower, fresh vegetable salad (rucola, red chard, beetroot, cherry tomatoes), boiled broccoli, 2 slices of Schwarzwald ham

Day 16

Breakfast: 1 apple, almonds

Lunch: Chicken leg baked on Sauerkraut, boiled potatoes

Dinner: Chicken broth

Day 17

Breakfast: 2 boiled eggs. 5 cherry tomatoes, cashew nuts, hazelnuts, 1/2 pear (I went to a doctor in the morning to give blood for tests, so I had to take the breakfast with me and eat it after)

Lunch: Chicken leg baked on Sauerkraut, boiled potatoes

Dinner: Chicken broth

Day 18

Breakfast: 2 slices of Schwarzwald ham, fresh spinach, cucumber, 3 cherry tomatoes, 1/2 pear

Lunch: Baked minced pork meet with grilled potatoes and vegetables (zucchini, beetroot, sweet potato, carrot, yellow and red pepper and fresh cherry tomatoes, cucumber and spinach

Dinner: Goulash (boiled pork meat with onion, peppers, mushrooms and sweet paprika)

Day 19

Breakfast: 2 slices of Schwarzwald ham, fresh spinach, tomato, mango, blueberries

Lunch: Baked minced pork meet with grilled potatoes and vegetables (zucchini, beetroot, sweet potato, carrot, yellow and red pepper and fresh cherry tomatoes, cucumber and spinach

Dinner: Goulash (boiled pork meat with onion, peppers, mushrooms and sweet paprika), mixed potatoes with boiled cauliflower, fresh cucumber, radish and cherry tomato

Day 20

Breakfast: 2 Scrambled eggs, cucumber, Mangold, cherry tomato and blueberries

Lunch: Roasted pork neck with green beans, boiled potatoes, fresh cucumber and cherry tomatoes

Dinner: Goulash (boiled pork meat with onion, peppers, mushrooms and sweet paprika), mixed potatoes with boiled cauliflower, boiled spinach, fresh cucumber, radish and cherry tomato

Day 21

Breakfast: Mixed avocado with 1/2 banana, mango, juice of 1/2 lemon, cashew nuts, hazelnuts, walnut, blueberries (As I cannot eat eggs anymore, I am trying to eat something else…not that it tasted better but at least I don’t feel like throw up)

Lunch: Baked cod with rosemary, roasted green beans, boiled potatoes, fresh cherry tomatoes

Dinner: Roasted vegetables (onion, beetroot, yellow and red pepper, green beans, cauliflower) with olive oil, 1 slice of Schwarzwald ham, 1 kiwi, 1/2 orange (Not sure if this is correct according to whole30 but I had huge taste for fruits) – I wasn’t able to finish the meal so I left some kiwi and oranges for the following morning

Whole30 after transplantation – Week 2

This week was weird. It started well as I was finally able to go to work after the illness last week but on Wednesday I was feeling very bad again. Both mentally and physically. I felt cold, depressed, had a headache and also my stomach was somehow not well. Later that day I found out that I got my period so at least I knew where the problems were coming from, however, it didn’t make me feel any better. So I went home earlier and was resting.

On Friday I felt better but I had terrible nightmares so for a change I slept very bad. One of my dreams was about eating a piece of chocolate. Yeah, you read it correctly – nightmare about chocolate! I know it may sound funny but I woke up really stressed and confused. It took me a while to come back to reality but then it was a huge relief to find out that I actually didn’t eat it ūüėÄ After this I fell asleep again and woke up after another bad dream – this time it was about going to doctor where all my kidney and diabetes test results were very bad. I woke up with shock and wasn’t able to sleep again.

On Saturday, I found out that I had some new herpes on my lips and also started to feel unwell. I wasn’t sure if it was from the stress from the bad dreams or if I was getting ill again. On Sunday I got a headache, higher (and then very low) temperature and felt very weak. I have never measured myself temperature of 34,5 degrees which I did have today. Yes, 34,5…I measured it twice and was looking for any signs of zombie transformation. So, here I come, ill again.

My feelings from this week are very contradictory. Following the Whole30 regime and food restrictions are not hard for me, make me feel very good and have many good effects on me. Mostly I am full of energy, need to sleep less, have a good mood, I am also way less nervous and grumpy and last but not least I feel that some clothes fit me better.

On the other hand, I am¬†almost constantly feeling cold and I also think that this regime¬†stresses me without me even realizing it. So I am thinking about if the cold together with the stress¬†negatively affect my immunity and that is the reason why my illness keeps coming back? I haven’t been ill for a long time and I even don’t remember when it was the last time when some illness returned in less than a week.¬†I am really curious about what the third week will bring.

Here is my meals’ diary for the second week:

Day 8

Breakfast: 2 scrambled eggs with spinach and mushrooms (it was supposed to be omelet but it kind of failed to keep the desired shape :D), cherry tomatoes, raspberries

Lunch: Baked pork chop with bone with Ghee and mushrooms, vegetable salad (fresh spinach, lettuce salad, beetroot, carrot, cucumber, cherry tomatoes, olive oil

Dinner: Soup made with duck meat and vegetables (carrot, cauliflower, celery, green beans ‚Äď most of the vegetables mixed)

Day 9

Breakfast: 2 boiled eggs, 2 slices of Schwarzwald ham, cucumber, carrot, cherry tomatoes, fresh spinach, 1/4 pear

Lunch: Baked pork chop with bone with Ghee and mushrooms, vegetable salad (fresh spinach, lettuce salad, beetroot, carrot, cucumber, cherry tomatoes, olive oil

Dinner: Garlic onion soup made with Ghee, 1 carrot, 1 potato, marjoram, chive (I felt very cold during the whole day so I made me this soup to help me warm up. It’s also very good in this cold and rainy weather to boost the immunity)

Day 10

Breakfast: 2 scrambled eggs made with Ghee, spinach, cherry tomatoes, cucumber, and raspberries

Lunch: Baked minced pork meat with garlic, baked potatoes, grilled zucchini, beetroot, sweet potato, carrot, yellow pepper and fresh salad, cherry tomatoes and pear (This was a super awesome meal. The best so far!)

Dinner: Grilled salmon with 1/2 potato, beetroot, onion, cherry tomatoes, yellow pepper, fresh spinach, cucumber and few almonds

Day 11

Breakfast: 1 boiled egg, 2 slices of Schwarzwald ham, fresh salad, carrot, cucumber, few almonds, and raspberries

Lunch: Baked minced pork meat with garlic, baked potatoes, grilled beetroot, sweet potato, yellow pepper, mushroom and fresh salad and cherry tomatoes

Dinner:¬†Baked minced pork meat with garlic, baked potatoes, grilled beetroot, sweet potato, yellow pepper, mushroom and fresh salad, radish, kohlrabi, and kaki (This dinner was too much, I wasn’t able to finish it so I left some radish and kaki for the breakfast next day)

Day 12

Breakfast: 1/2 avocado mixed with 1/4 pear and juice of 1/2 lemon (This was so far my biggest challenge as I hate the taste of avocado, so I had to hide its taste into something else. Each bite was a fight for me but I managed to eat the whole bowl! The rest of the avocado is still in the fridge though…)

Lunch:¬†Baked minced pork meat with garlic, grilled orange pepper, zucchini, mushrooms, boiled potatoes with caraway seeds, fresh cucumber, radish and carrot (again, I wasn’t able to finish the whole meal so I left some boiled potatoes for dinner)

Dinner: Scrambled eggs with boiled cauliflower, boiled potatoes, fresh cherry tomatoes and cucumber

Today I got a bit hungry later in the evening so I had one small red apple before I went to sleep.

Day 13

Breakfast: 1 boiled egg, 2 cherry tomatoes (Today I woke late and didn’t feel well, so I had only very little breakfast)

Lunch: Baked chicken leg, boiled vegetables (red and yellow carrot, broccoli, green beans), boiled potatoes (My first lunch in a restaurant in this challenge – well, “restaurant” is not the exact word, more like a buffet in a shopping center. I was afraid of it,¬†but it was not such challenge as I thought and the food was very good and cheap :D)

Dinner: Vegetable salad (rucola, red chard, radish, beetroot, kohlrabi, coriander, cherry tomato, olive oil), baked beef meat

Day 14

Breakfast: 1/2 avocado mixed with berries (strawberries, blueberries, raspberries, blackberries, red currant), 1/4 mango

Lunch: Fried turkey breasts, onion, orange pepper fried with olive oil with boiled broccoli and fresh vegetable salad (rucola, red chard, beetroot)

Dinner: Scrambled eggs with boiled cauliflower, fresh vegetable salad (rucola, red chard, beetroot, cherry tomatoes), boiled broccoli, 2 slices of Schwarzwald ham

Whole30 after transplantation

Is going through the Whole30 program after transplantation safe or not? When I started to think about taking this challenge, I did a huge research on this theme. Well, huge might be a too strong word as I didn’t find much information about this specific theme. I found some concerns that eating too much protein might be dangerous for people who have some kidney illness (well I knew this already as I went through this stage in the past) but no evidence of eating a lot of protein after transplantation being dangerous for the patients. Just warning that eating too much fat might be dangerous for their figure as they are taking corticoids which increase taste.

In the last two years I gained almost 7 kilos and lately I was almost constantly feeling tired but couldn’t sleep at night, often had some digestion problems, diarrhea or felt bloated and very bad mood swings. Almost all the symptoms that the creators of the Whole30 program claim might be caused by eating food that is not healthy for you, you are allergic to or sensitive to. I read the whole program to see what rules you have to follow and I decided to give it a try.

Today I have finished the first week so I can already tell what changes I feel. So far I have more energy than I had before I started and also I sleep way better. One of the rules of the program is that you should eat only three times per day which I wasn’t able to follow in the first few days. I had to have two fruity snacks – one between breakfast and lunch and the other between lunch and dinner. From the third day I needed only one snack and from the fifth, I am fine with three meals per day. Interesting is that I don’t feel hungry the whole day and I don’t have any cravings for sweets (and I was used to having something sweet every day) unless it is right in front of me directly attacking my nose with its smell (so preparing snacks for my daughter is kind of self-torturing process).

However, I would be lying if I said that I am not afraid if the program can’t somehow hurt my kidney. I am trying not to eat too much protein but protein and fat are the basics of this program as they keep you feeling full for a long time. So for the next week, I am considering lowering the amount of meat and protein overall and maybe contacting my doctor and asking for a special check.

During the first week I tried to measure my sugar the whole day (before and two hours after each meal) without taking the regular pills reducing the amount of sugar which the blood absorb from the food. I found out that my sugar level was almost normal and so I decided to try to go without them. Will measure my sugar more often now though. Just in case.

Another rule also is that you are not allowed to weigh yourself or measure in any way. Hah, kind of tough for someone who is used to weighing herself each second day. Oh well, a challenge is a challenge with all it takes. So, in the morning of the first day, I did my last measuring. I started with weight of 57.7 kg,

Overall I don’t have any bigger issues with following the meals rules, the biggest challenge is the breakfast though. I am having eggs every day in different variations but I am a bit afraid that soon I won’t be able to eat them anymore. And what would I do then? No idea. Well so far I am still able to eat them so will see what the next week brings.

The only complication was that on the third day I became ill. Nothing serious just some cold with a bit higher temperature and about 15 little but terribly painful herpeses on my lips (the usual thing in my case, unfortunately). So I was staying home (and had more time to prepare all the meals). Tomorrow I am going to work again.

Not sure if it is connected to the food or to the illness (or the terrible weather outside lately) but I am feeling colder. I am wearing more clothes than I usually do and need an extra blanket at night. On the other hand, I see a big improvement in my mood. I am almost constantly in a good mood (might be connected to the better sleep) and sometimes I don’t even believe my reactions. It happened few times that something didn’t go as I wanted or expected and normally I would get angry or started to yell or argue but I didn’t (and I honestly asked myself: “Did you really just say/do this instead of freaking out?”). That’s more than positive!

Here is my meals diary for the first week:

Day 1

Breakfast: 2 boiled eggs, cucumber, tomato

Snack 1: White grapes

Lunch: Stewed turkey meat in carrot with boiled potatoes.

Snack 2: Banana

Dinner: Beef soup with vegetables

Day 2

Exactly the same as on Day 1

Day 3

Breakfast: Scrambled eggs with onion made with Ghee, tomato, cucumber, carrot

Lunch: Roasted onions, peppers, tomatoes, and eggs ( in Czech we call it “Leńćo”) with potatoes cooked in the skin

Snack: Apple

Dinner: Vegetable salad (few types of green salad, cabbage, carrot) with salmon grilled with dill and garlic

Day 4

Breakfast: Scrambled eggs with spinach (they may not seem good, but they were awesome!), cucumber, and carrot

Lunch:¬†Roasted onions, peppers, tomatoes, and eggs ( in Czech we call it “Leńćo”) with potatoes cooked in the skin

Snack: Pear

Dinner: Baked chicken leg (without skin), grilled vegetable (zucchini, eggplant, red and yellow pepper, onion), grilled potatoes

Day 5

Breakfast: 1 boiled egg, 3 slices of Schwarzwald ham, carrot, cucumber, cherry tomatoes, small bowl of raspberries

Lunch: Baked chicken leg (without skin), grilled vegetables (zucchini, eggplant, red and yellow pepper, onion), grilled potatoes

Dinner: Vegetable salad (few types of green salad, cabbage, carrot, cherry tomatoes) with shrimps and salmon grilled with dill and garlic

Day 6

Breakfast: Scrambled 3 eggs with onion and Ghee, cucumber, and cherry tomatoes, 1/2 red apple

Lunch: Grilled salmon with steamed vegetables (broccoli, cauliflower, carrot), cherry tomatoes and boiled potatoes

Dinner: Baked duck (I have to admit I had a small piece of the skin as well), grilled vegetables (zucchini, eggplant, red and yellow pepper, onion, sweet potato), boiled potatoes

Day 7

Breakfast: 1 boiled egg, kohlrabi, cucumber, carrot, cherry tomatoes (woke up in a creative mood – this is supposed to be butterfly :D)

Lunch: Soup made with duck meat and vegetables (carrot, cauliflower, celery, green beans – most of the vegetables mixed)

Dinner: Vegetable salad (few types of green salad, cabbage, carrot, cherry tomatoes), baked chicken and duck meat (aka leftovers from previous days), small bowl of raspberries

 

12th anniversary, yay!

So it’s here again. My transplantation anniversary, 12th in a row. This year I really celebrated it as my mom was visiting me and we had a great time together. As I already wrote last time, there is a Memory of deceased day in the Czech Republic each year on November 2nd. This year this day was also connected to one special event in IKEM ( the hospital where I got transplanted). They officially unveiled a glass panel with names of all deceased donors from 1986 to 2016 written on it. Together it was 2652 names. You can read more about it here¬†and see the pictures on IKEM’s Facebook here.

IKEM

As my mom was in Prague and this event was happening directly on my anniversary, we just couldn’t miss it. We were watching the ceremony and when it ended we lit a light for all the people named there. I also read all the names from 2005 as one of those was the one most important for me. The one whose kidney still lives with me.

When this event ended, we decided to properly celebrate my anniversary and have a great time. So we did! We went to the hospital cafe and ordered us amazing hot chocolates with whipped cream. Yum! We were chit chatting and enjoying.

IMG_3249

When we felt full, fat and sweet enough we went home where we were resting and digesting. And we took a nap. A long one and a strong one. So strong that when we woke up we were thinking about what to do next. And what do two women do when they have lots of time and a free coupon to IKEA worth 50 EUR (3 years old by the way)? They go shoppiiiiing!

We went to IKEA and many furniture, clothes, cosmetics, food and other shops and when my car was full enough, we went home where we were watching tv and talking, having great dinner and enjoying the rest of the day. I think this was one of the best days with my mom in a long time and I am very happy we had it.

I think it is really important to celebrate these occasions because you never know what happens tomorrow. Maybe there will be no such celebration next year so why not to enjoy this one?

World Kidney Day 2017

It is here again! Let’s celebrate our kidneys, they deserve it! They work hard 24/7 without any pauses or vacation. Did you know your kidneys filter 125 ml of blood each minute? It means 180 liters of blood daily! Wow, that’s amazing, isn’t it?

Over the last 11 years, it has become a tradition to proclaim the second Thursday in March the World Kidney Day. It is a worldwide campaign which aims to highlight the importance (and they ARE important!) of kidneys for our body and increase¬†awareness of possible illnesses (or damage) and¬†their prevention. Did you know most of the¬†kidney illnesses don’t hurt at the beginning? The pain usually starts when the illness is serious and sometimes even uncurable. Ooops, scary, right? The kidney problems can be easily recognized from your blood or urine so think of prevention.

This year the World Kidney Day is on Thursday, May 9th (TODAY!). Like each year, also this year’s campaign is focusing on one theme connected to the¬†health of kidneys, risk factors or illnesses. This year the theme is Kidney disease & Obesity.

World-Kidney-Day-2017

Obesity is becoming the modern age epidemy and is closely connected to diabetes and high blood pressure. It is also one of the risk factors for kidney illnesses as it increases the demand on kidneys work. They have to filter more blood than normally to meet the metabolic demands of the body. Logically, more kilos, more work, do the math!

The good news is that obesity can be prevented or reduced when already developed with a healthy lifestyle and physical activity! So don’t eat poisonous stuff (e.g. burgers, french fries, cakes full of white sugar, etc.), eat more veggies and fruits, drink lots of water or tea (without sugar) and move! Watch this¬†or this video to get the mood ūüėČ

Over the world, there are many activities and connected campaigns to support the World Kidney Day like open days in hospitals, possibilities to have your health checked on public events, meetings with doctors, TV and radio campaigns, sports events and many many others, so check them out in your area! Some of them are listed here.

I am definitely going to join the ¬†#move4kidneys¬†initiative. If you want as well, just do any physical activity and share it on your profile on Facebook, Twitter, Blog, Web…wherever! with the move4kidneys hashtag. So run (that’s what I love), walk, dance, swim, ride a bike, do yoga, aerobic, pilates, climb rocks (or trees), jump on trampolines, pump your muscles in fitness, ¬†play football, volleyball, basketball, tennis, hockey, do handstands, do whatever you like, just do it! See you somewhere there!

 

 

Movie: Phoebe in Wonderland

Details about the movie at IMDB

I had to stop crying first to be able to write about this movie. At certain point I wasn’t able to stand it without tears.

Always when I am watching some movie, I am thinking about if it is worth writing about it on this blog or not. I think about how I feel about the movie, what I would write about, what rating I would give it etc. This movie caught my attention immediately. For first, I like Elle Fanning and her way of playing, and second, I read somewhere that the movie was about a girl with Tourette syndrome , which I read about in some magazine last week. That was kind of coincidence so I decided to watch the movie to see how such life looks like.

Basically the movie is about a little girl Phoebe who suddenly starts to act differently. At the beginning there are just small changes but in time they are getting more obvious and more often. Nor her nor her parents know what is happening. She starts doing and saying things that are improper and sometimes breaking rules, but she can’t help it and is confused. She also starts to run away from the real world, which is more and more stressful and alarming, to an imaginary world of fantasy, where the characters from the play Alice in Wonderland act and talk to her.¬†The only place where she feels safe is in the school’s theater, where the kids are preparing a school play Alice in Wonderland, where she plays the main role of Alice, led by a drama teacher Miss Dodger.

 

 

The movie is showing the fight of Phoebe and people around her with the changes in her behavior and the different ways how they try to deal with it. Phoebe is trying to escape to the world of fantasy, the kids and her sister are angry with her, her parents are desperate, the principal is lost (it actually shows how inadequate people on important positions can be destructive)…only Miss Dodger is somehow able to make Phoebe calm and safe.

But what really made me cry was the moment when Phoebe found out what was happening with her and was explaining it to her classmates. I think it must be very hard for a kid admit that she is different and explain it to other kids. On the other side, they finally understood why she was doing those weird things and saying those weird words. Another thing is, if they decide to accept it and tolerate it or will use it as a apology for humiliation and mockery.

For me, the rating is 8/10

 

Sunny days are awesome

Especially in winter. On weekends. Like this one! On Saturday morning I woke up with my daughter watching me and asking me: “Mom, are you still sleeping?”. Well…not anymore. But I wasn’t annoyed as I slept very good and so I was actually glad that she woke me up. But as a punishment I grabbed her and was torturing her with my hugs and kisses for few minutes. Poor child ūüėÄ

And then I saw it through the window. The clear blue sky and the sunshine everywhere. After few weeks of grey, cloudy, snowy, rainy and whatever the hell sky, it was suddenly totally clear. It somehow made me happy, full of energy and willing to go out and do something.

It started with some great time outside with Ema (from throwing snow on each other through sliding from a small hill (about 5 meters long) to trying to build a snowman from a snow which wasn’t sticky at all). When we came back home after around two hours, we were tired, frozen and very hungry. So I baked us salmon with potatoes and vegetables that we both love and trust me, it tasted like heaven!

After lunch when her dad took Ema to his place, I went for a run. I think I am not able to describe the awesome feeling of running on crunchy snow when the sun is shining, the nature is covered with snow and everything looks so beautiful. It feels so great! No problems exist, nothing is bothering you, nothing matters at that time….just you, your feet and your breath (and where you step so you don’t break your leg on snow and ice)…for me it is kind of meditation. It always fills me with endorphin and I feel like life is amazing.

Well, when I came back home, I received a message that Ema had temperature and was probably ill so it spoiled my mood a bit and I decided to visit her and bring her some stuff she might need. When I saw that sweaty poor little creature I felt sorry for her but she was covered with blankets, slowly eating apple and playing on ipad so she seemed pretty fine. Not really interested in my company. So I started to talk to my ex-husband and his wife and we somehow ended up having great evening with lots of talks, jokes, wine and beers (well, they had…I came with car, so was just drinking water :D). I came back home after 11 pm. Very nice evening.

On Sunday I woke up at 8:30 totally refreshed and full of plans again. First of all I cleaned the flat and then started to work a bit. After few hours I started to write an article about the World Kidney Day¬†which is slowly but surely coming and I promised to write an article about it for one magazine. However, all the time I was writing the article, I was looking through the window to the nearby park and was watching the sunshine covering the nature. Couldn’t focus fully on the writing.

And then I couldn’t stand it anymore and decided to go out. Without any plan what to do there, I just needed to leave the flat. So I did. I was walking slowly around without any particular direction, just enjoying the sun, the nature, the snow….for some time I was sitting on a bench and watching people passing me and just felt awesome. Everything was so beautiful and peaceful…I think I spent around two hours there until I started to feel cold and decided to go back home.

However, I felt so full of energy that I turned on Pink and Avril Lavigne on very high volume and started to dance around my flat. After a long time I had that great feeling of total happiness. It’s very rare feeling for me so I was enjoying it fully. At the end I even started to exercise…some squats, push ups, plank, jumping jacks….just needed to use all the accumulated energy! I think my neighbors loved me today ūüėÄ

Overall, this weekend was one of the best in a long time (except Ema being ill). I managed to do everything I had planned and even more just because of the sunshine. I love it! I feel very connected to sun and overall to nature which literally fills me with  energy and good mood. Especially in autumn or winter when the sun is not shining very often.

My life with transplanted kidney…

… is hard. I am very happy that I have her (in Czech a kidney is female and I just can’t write IT)¬†and trust me, I do love her. Without her I would be dead now. Dead for 11 long years already. And I wouldn’t have the most amazing daughter in the world. Nothing. Just nothing. But the gift of life was not for free.

People with transplanted organs have to fight for a “normal life”. They have to put way more effort in it than healthy people. Each pill we have to take to keep the transplanted organ safe in the body has long list of side effects. From those that are just tiny little details like¬†my hair and nails being weak, being more tired than others and needing longer time for regeneration after exercise to more serious ones like causing depressions or diabetes, to those¬†that actually threaten me as they increase significantly risk of all possible illnesses like cancer, heart attack, stroke and many many others.

But still it’s worth it. At least for me.¬†Every minute in my life I can spend with my daughter is the most awesome gift I was ever given and I am endlessly grateful for it. And it wouldn’t be possible without the transplanted kidney. So I am very, very much grateful for this as well.

 

2016 Overview

Well, I think 2016 wasn’t the best year I ever had but to be honest, wasn’t the worst as well, so I think I can say it was average.

It started with recovery from bladder inflammation and a break up (after just one or two months of dating but still it was painful for me). Well, one of the worst beginnings of new year. Full of depressions, sadness and tears. When I recovered fully and started to work and exercise again, another bladder inflammation surprised me in February. This time way stronger so I had to stay in a hospital. When I recovered again, thrombosis in my right leg stroke me in April and forced me to stay in a hospital again.

At that time I started to be really down – not being able to exercise for a long time caused some weight gain (well, nothing serious, around 2-3 kilos, but I hated it) and loss of condition. I started to prefer being alone in my flat and pity myself. I know it wasn’t the best idea ever but I just couldn’t help it. I just needed it.

Fortunately after few rivers of tears, roller coaster mood swings, hours of self pity and tons of used tissues, my brain decided to change the tactics and to try to run again. Running has always been my life saver so as soon as I started to run again, everything was suddenly better, even though I had to start almost from the beginning again.

I also started to do weigh exercises so my body became stronger and everything was covered with sun light. I finished few runs by myself, few with my dad, including 2run (me 10km + he 11km = half marathon together) in Ceske Budejovice and the most beautiful run in my life – Behej Lesy Karlstejn (12km).

Unfortunately another bladder inflammation brought me down in October but this time I didn’t take it that tragically. Just another visit in a hospital.

Work-wise this year was very good. Nothing really changed from last year but I do love my job and I hope I will be able to do it million more years ūüėČ The great thing is that I can work even in a hospital so unlike my running, my hospital visits didn’t ruin my work schedule.

Relationships…oh well, one ended right at the beginning of this year an none other appeared so this year was not really love/relationships friendly but I cannot force it. Hopefully it will come once (soon) but if it doesn’t, it will not ruin me anymore as I am pretty happy living my life as it is now.

Overall I think this year taught me some important things and I believe I am now mentally stronger and it is easier for me to overcome hard situations and obstacles. I hope next year will be better and healthier. I have many plans and I want to start doing some new things which I am excited about, so wish me luck ūüôā

Anyway..to everyone who came or will come across this blog, I wish you all very happy, successful and healthy year 2017. May all your dreams come true. (And don’t forget to visit my pages again ;)).